Tag Archives: thalidomide

Grant for Thalidomide victims

An £80 million grant has been put aside for over 300 Thalidomide victims in England, the government has announced.

The money will help meet their health needs over the next 10 years as they approach old age, Health Minster Norman Lamb said.

The drug was used by expectant mothers to combat morning sickness between 1958 and 1961 but it led to many babies being born with physical disabilities.

The Thalidomide Trust welcomed the announcement.

The £80m sum will be paid to the Thalidomide Trust through an annual grant.

This means that England’s 325 Thalidomide survivors, many of who are unable to work, will receive financial assistance with adapting their homes and cars as they grow older and their health is expected to worsen. The average age of the survivors is 50.

The survivors had previously received some compensation from the company – Distillers – that distributed the drug.

But the government admitted a history of being at fault over the drug in 2010, and agreed to a three-year pilot project which distributed more than £25m in grants.

Much of this money has been spent by survivors on adapting their houses, buying wheelchairs and funding personal care.

The government says this new funding recognises the increasing complex health needs of Thalidomide survivors more than 50 years after they were born.

Health minister Norman Lamb said he had “deep sympathy” for all those affected by the drug.

“This deal represents our clear acknowledgment that ‘thalidomiders’ should be supported and helped to live as independent lives as possible, and we hope that this grant will aid that cause and provide an element of long term financial security.”

John Hurley, finance director of the Thalidomide Trust, welcomed the money and said it would be distributed according to degree of disability.

Thalidomide

Thalidomide

“People can start to plan and build it in to planning for their old age.”

Mikey Argy led the lobbying of MPs ahead of today’s announcement.


She said: “This will give thalidomiders security. There had been an idea that the money might have been withdrawn.

“It will help people improve their health in very broad ways – for example, someone who’s deaf will be able to have a fuller life by taking a signer out with them.

“We were able to do strange things with our bodies when we were young and agile to get around our disabilities – people have relied on their feet and teeth to do everyday things, for example – but this gets harder when you’re older.”

But there was still bitterness too. Martin Johnson, director of the Thalidomide Trust, said the survivors felt a “massive sense of injustice” towards the German manufacturers of thalidomide, Gruenenthal.

The £80m funding affects Thalidomide survivors living in England only.

The Scottish Government has pledged a separate £14.2m over the next ten years to help the 58 Thalidomide survivors in Scotland as they grow older.

The Thalidomide Trust will report back annually to the Departments of Health about how the money is being distributed and controlled.

Thalidomide maker issues apology

The German company that invented thalidomide has issued its first apology in 50 years to thousands of people born with disabilities after their mothers took the drug.

The drug, sold in the 1950s as a cure for morning sickness, was linked to birth defects and withdrawn in 1961.

Gruenenthal said it was “very sorry” it had remained silent on the issue.

But his apology has been dismissed as insufficient by victims’ groups who say the firm should pay compensation.

Mr Stock, Gruenenthal’s chief executive, issued his company’s apology at the unveiling of a bronze statue symbolising a child born without limbs because of thalidomide.

“We ask for forgiveness that for nearly 50 years we didn’t find a way of reaching out to you from human being to human being,” he said at a ceremony in the western German city of Stolberg, where the firm is based.

“We ask that you regard our long silence as a sign of the shock that your fate caused in us.

“We wish that the thalidomide tragedy had never happened. We see both the physical hardship and the emotional stress that the affected, their families and particularly their mothers, had to suffer because of thalidomide and still have to endure day by day.”

By the time the drug was pulled from the market, more than 10,000 babies worldwide had been born with a range of disabilities caused by the drug.

This included shortened arms and legs, blindness, deafness, heart problems and brain damage.

There are between 5,000 and 6,000 sufferers still alive. Thalidomide UK says there are 458 people in the UK who were affected by the drug, but that for every thalidomide baby that lived there were 10 that died.

Thalidomide

Thalidomide

Mr Stock said the company regretted that the potential for thalidomide to affect the development of foetuses “could not be detected by the tests that we and others carried out before it was marketed”.

BBC science correspondent for the Today programme, Tom Feilden, said one of the main issues was what Gruenenthal knew about the drug’s side effects, when it knew about them and whether the company could have acted sooner in withdrawing it from the market.


Martin Johnson, director of the Thalidomide Trust, told the BBC that the news that the manufacturers were starting to acknowledge responsibility was welcome but they were still trying to perpetuate the myth that no-one could have known of the harm the drug could cause when there was, he said, much evidence that they did know.

Freddie Astbury, the president of Thalidomide UK, said: “It’s taken a long time for them to apologise. There are a lot of people damaged by thalidomide struggling with health problems in the UK and around the world.

“So we welcome the apology, but how far do they want to go? It’s no good apologising if they won’t open discussions on compensation. They’ve got to seriously consider financial compensation for these people.

“We just want people to live a comfortable life and that means Gruenenthal have to pay for their mistake financially.”

Some compensation has been paid, particularly by thalidomide’s British distributor.

Gruenenthal itself has previously paid compensation to victims of the drug, many in Germany, and has voiced regret over the issue – but has not admitted liability.

Compensation claims are still outstanding, including one key class action in Australia, which saw thalidomide victims win the right to have their case for compensation heard there.

The drug is still used today under strict controls to treat some bone marrow cancer patients.